Deaf awareness at Christmas

Day after Boxing Day, busy Christmas household

I knock gently on Hayley’s door and peer round to see her sitting up in bed, duvet pulled up to her chin, headphones on.

“Thanks Mum.” She smiles gratefully, taking the hot water bottle and paracetamol I give her.

She’s not ill, just suffering from a headache and taking some time out away from the madness.

If there’s one thing Hayley loves it’s Christmas. She’s very sociable, loves parties, adores her little nephew and young cousins and is addicted to chocolate – what’s not to love!

But over the years I’ve realised it’s not the easiest time for her, as deafness brings extra challenges when there’s so much going on and an onslaught of guests.

Christmas dinner

There’s the obvious increase in chaotic noise levels, with everyone chattering at once, making it hard for Hayley to follow. She often ends up with a headache from her hearing aids amplifying all the extra noise.

And many of the visitors are people we don’t see too often so they are not deaf aware, and this adds to stress and sense of exclusion for Hayley when she can’t easily join in.

One likely flashpoint is the dinner table. Mealtimes with a dozen or more people crowded round, all talking over the clatter and scraping of plates is a minefield for Hayley.

As well as the din she struggles to follow the pinball nature of the conversation ricocheting around the table, as well as not being easily able to lipread because she can’t see everyone’s face.

So she often misses bits or perhaps the main point. Someone – usually me, her dad or her brothers – will stop to explain to Hayley what she’s missed. It makes for an interrupted flow of conversation, which we’re used to, but visitors don’t always understand or show patience and consideration towards her.

Hayley often ends up feeling excluded, leaving her very frustrated and giving her self-esteem a bit of a hammering, even more so when she picks up on the exasperation of some guests.

We of course want to avoid these situations, but don’t want to make a big deal of it which would embarrass Hayley and make our visitors feel they’re being lectured, so it’s a tricky balance. We just tend to drop in deaf awareness tips casually and hope guests pick up on it and follow the example of the rest of us.

These seasonal gatherings of non-deaf aware visitors are also a prime time for over use of the ‘Oh it doesn’t matter’ response when Hayley says ‘pardon?’ It is a huge insult to someone who is deaf – the phrase is banned in our house – and likely to make her blood boil.

“If it’s important enough to bother saying to everyone else, then why aren’t I important enough to bother repeating it for me?” she quite rightly used to challenge her brothers.

They’ve grown up learning why it’s important and will repeat it to others who fall foul of the rule. Hopefully other guests catch on too.

One thing’s for sure, over the years things have got easier to deal with. We know that time out for a bit of peace and quiet is a good idea for keeping Hayley’s equilibrium.

And with Hayley and her brothers maturing, and perhaps deaf awareness messages getting through to the odd guest, the extra stresses and challenges of having a deaf child are definitely easing – shame I can’t say the same about the rest of Christmas!

Please note the image is not of Hayley.

The balance between school work and activities

Hayley’s looking forward to the Christmas holidays after a demanding term in her final school year, while Tiger Mother is encouraging her to cut back on out of school activities.

Saturday morning, elbow deep in revision diaries and the family calendar

Hayley’s counting down the days until the end of term, getting more excited with every little chocolate reindeer that falls out of the windows in her advent calendar. It’s an exciting time evidently, Christmas, even for a 16-year-old – long may it last, I say.

31167_fabric_tree_advent_calendar

It’s also been quite intense at school so she’s looking forward to the holidays. The fact is it’s her final year at school – I can’t believe I’m saying it! – and the pace is hotting up. Lots of hard work is required. And earlier this month they started their mocks, which was quite a shock for her as the realisation hit how much effort is needed to succeed in next year’s GCSEs.

“Hayley’s got to knuckle down this school year”

Hayley’s got to knuckle down this school year and that means dropping – albeit very reluctantly – some of the many and varied out of school activities she usually does. There’s been a fair bit of wrangling over exactly what she can still fit in without it affecting her school work.

I’ve always encouraged her to take part in everything going – Guides, sports clubs, air cadets, work. She struggles socially due to her deafness and social communication difficulties, and having structured activities to go to has really paid off; it’s done her a power of good in terms of confidence, self-esteem and just learning about the world and how to be in it. It’s also equipped her with experience that might help her get a job in the future. But now there’s got to be a compromise between fun/experience and nose to the grindstone studying.

“Leadership experience will help her personal self-development”

She dropped Guides – easy because she was too old at 16. Ditto the local youth enterprise scheme, which gave her four hours’ paid work a week. But she is looking for a Saturday job, doing tennis every Monday and still going to air cadets twice weekly, though that’s under review. And now she’s decided to try Explorers, the follow-on from Guides and Scouts, which involves doing one night a week plus an extra evening as a young leader for Cubs. I can see the value of it though, as well as the fun. Leadership experience will help her personal self-development and possibly boost her job chances in the future.

“She’s not strong academically”

It’s just trying to decide together how far to tip the balance. She’s not strong academically, so has to try harder to get the minimum grades. But there again…

Aaargh, I don’t know!

Hopefully she’ll soon see for herself she can’t do it all and drop some activities of her own accord, it’ll be better if it happens that way. And I can always remind her about the NDCS Young Leaders courses next summer, which have an accredited leadership certificate – GCSE exams will all be over bar the shouting by then, so she’ll be able to throw herself into it to her heart’s content.